Subject: Cavernoma Alliance UK - April 2011 e-mailshot
Dear %%salutation%%
Welcome to our April e-mailshot bringing you the latest news about Cavernoma Alliance UK. It has been a busy month for the charity and its supporters.
Anthony Nobbs (member 243) raised over £1,400 for Cavernoma Alliance UK completing the London Marathon in 5 hours, 31 minutes and 38 seconds. Very many thanks to all who supported him.
Paula Mowbray (member 268) and Brian Cavill were married recently. Our congratulations. It was a wedding with a difference. Rather than wedding gifts Paula and Brian raised £500 for Cavernoma Alliance UK. Our deepest thanks.
Alison Garwood, Member and Trustee; Frank Gent, Member and Trustee; and Ian Stuart, Founder Member and Trustee represented Cavernoma Alliance UK during the recent conference of neurosurgeons in Bristol in order to raise the profile of the charity. We have photos here <http://is.gd/UiP1aj>
Following on from the regional CaverHubs Frank Gent, Member and Trustee; Brana Thorn, the Young Persons' CaverHub Coordinator and Ian Stuart, Founder Member and Co-ordinator, spent a successful day with 26 young people and their families in London on 9th April at the first Young Persons' CaverHub. Three speakers including Consultant Paediatric Neurosurgeon, Ms Jessica Ternier from Great Ormond Street were followed by lunch at the Rainforest Cafe and a trip to the London Aquarium. This was made possible by funding from Roald Dahl's Marvellous Children's Charity. We have photos here <http://is.gd/mtzhF2>
Frank Gent; a trustee of CA UK, attended the National Council of Voluntary Organisations Annual Conference in London on 1st March. You can read his report here <http://www.cavernoma.org.uk/opus321.html> on our web site.
Member 214 Tracey Hammond thammond2@hotmail.co.uk writes:
Hyde Park
LONDON
Sunday 11 September 2011
My daughter is 16 years old and her name is Eden Hammond. Eden has run this race for the last 3 years, just for fun and to raise money for a charity. When My cavernoma bled 18 months ago in June, she was due to run the race in the September and I made it a target to get up to London with her and watch her run, I managed it. So the race has become special to us and we would love as many women to come along for a great day out and support each other and runners. The atmosphere is great. GIRL POWER STUFF. Men are allowed to join in the support and picnic lunch after.
Your co-ordinator adds: “I hope that all the women in our charity will run/walk and raise money for the charity. Wheelchair users are encouraged to take part. As are Mums and buggies!”
If you're a new member, or if you dropped off our list for a while, you can now catch up on previous emailshots using our new emailshot archive which you can find at <https://member.cavernoma.org.uk/emailshots.html>
…and finally, you should have registered for the 5th International Cavernoma Alliance UK Forum. If you haven't, please register by the middle of May at <info@cavernoma.org.uk>. This conference will be held on Saturday 4th June 2011, beginning at 9:00am promptly in the Orion Suite, Grange Holborn Hotel, 50-60 Southampton Row, London, WC1B 4AR. This free event will include speakers, lunch and informal workshops (details of which can be found on our website). Please come along. You won't be disappointed. It is your Alliance. More details can be found here <http://www.cavernoma.org.uk/forum_2011.html>
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